Narok family in distress as SHA fails to cover costs for son's sickle cell treatment

Irene Chacha and her son, Morris ./REUBEN MOTOCHI
The family has lamented that the new Social Health Authority has failed to step in to help meet medical costs, despite the authority being touted as a solution to universal health coverage.
Vincent and Irene Chacha said they have been pushed to dire financial straits to cater for the medical needs of their nine-year-old son Morris’s needs.
“Our son is in constant pain and his mother has had to leave work to care for him,” said Vincent, a boda boda rider.
Dr John Gicuke, a haematologist, said the disease is an inherited blood disorder that affects hemoglobin, the protein that carries oxygen through the body.
The report raises serious concerns about the government's decision to proceed with the project without first establishing ownership of the system's infrastructure and intellectual property.
“The ownership of the system, system components, and all intellectual property rights shall remain in the ownership of the consortium,” Gathungu noted in the report, warning that this severely limits the government’s authority and oversight.
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